What is a Special Needs Trust?                                                

The basic purpose of a "special needs trust" (also known as a supplemental needs trust) is to provide benefits, by means of a trust, to a beneficiary who would otherwise lose eligibility for public assistance (Supplemental Security Income or Medicaid).  The beneficiary is one who qualifies for public assistance by reason of some disability that makes that person unable to hold meaningful employment and with insufficient assets to provide adequate support.  "Special needs trust" is a general term describing a number of trusts designed to meet the above stated purpose.

The simple definition of special or supplemental needs is anything that constitutes non-support items.  In other words, paying for anything the beneficiary wants for personal use that is not in the category of food or shelter (support expenses).  A trust that is deemed special needs cannot provide food or shelter expenses or the trust will be deemed an available resource.

  • Support expenditures are defined in the Social Security Procedures and Operations Manual System (POMS).
  • It is easy to say no food or shelter but it can be tricky.  For example, basic utilities such as gas, water and electricity are basic shelter expenses that cannot be paid by the trust. Utilities such as telephone and cable service are not basic and can be paid by the trust.
  • Food cannot be purchased by the trust, but food supplements can.  Non-consumable items such as toiletries, cleaning supplies and personal care items can be provided by the trust.
  • Personal use by the beneficiary is important.  If the beneficiary wishes to purchase something that is a legitimate purchase for the trust but intends it to be used by someone else, the purchase may not be allowed.
  • There is no limit on the value of household goods as long as they are reasonably necessary for the person to live in his or her residence.  Computers, furniture, and appliances are acceptable purchases.
  • Purchase and maintenance of a motor vehicle, as well as paying the insurance is allowable.  A motor vehicle is an exempt resource if used for the beneficiary.  Other transportation expenses may be paid by the trust.
  • Travel expenses, including a companion, can be paid by the trust.  Travel expenses may include travel, accommodations and meals.

Trusts can also assist in the funding for:

Dental Work

Trips to Visit Family

Home Modifications

Therapies

Vacations

Lift Equipped Van-Transportation

Cell Phone

Internet Service

 

Types of Special Needs Trusts

Pooled Trusts

A "pooled" trust is an alternative to a special needs trust and/or a disability trust.  It performs the same functions and is also authorized by state and federal law.  In a pooled trust, the beneficiaries' funds are pooled together for investment purposes and managed by a non-profit organization.  Each beneficiary has a sub-account containing their own funds.  There is no age limitation on participants.  Upon the death of a pooled trust beneficiary, the funds are retained by the non-profit organization rather than being paid to the state.  A plan must be developed to prove to the State that all funds should be spent during the individual's lifetime if the disabled person is 65 or over.  Upon the death of the beneficiary, the funds are retained by the non-profit organization rather than being paid to the state. 

Third Party Created Trusts

Trusts funded by someone other than the beneficiary are third party trusts.  A third party trust may benefit a person with a disability as long as it is a special needs trust. This kind of trust may be established either as a living (or “intervivos”) trust or a testamentary trust (created by a will).

Living Trusts

The living trust is ideal for a parent who wants to create a trust for a child who has a disability but does not want the child to lose eligibility for public benefits.   If there are other family members who want to leave something by will but do not want to create a special needs trust in their wills, they can merely make the devise to the existing trust.  The parent, of course, can make either lifetime or a gift by will to the trust.


Trustee Discretion

Sole and absolute discretion for distributions by the trustee is essential for any supplemental needs trust.

  1. There can be no way in which the beneficiary can “legally” compel distribution from the trust.
  2. That does not mean that the trustee cannot ask the beneficiary what he or she wants (or vice versa).  But the final decision is with the trustee.
  3. Prior approval by the trustee is important.  The beneficiary should not incur a debt and then expect the trustee to pay for it.
  4. All purchases by the trust should be paid directly out of the trust.  The trustee should never turn over cash to the beneficiary to buy a desired item.  Cash is equivalent to support in terms of public benefit eligibility.

If the trustee is uncertain as to whether or not an expenditure constitutes a special or supplemental need, he or she should consult an attorney or other professional who is knowledgeable and specializes in special needs trusts.  Expenditures that are prohibited by federal or state regulations, or other mishandling of the trust, can result in the beneficiary being disqualified from public benefits.